Current Edition

Finding and Treating Rare Disease Patients in a Global Digital Haybale

Healthcare data comes in all shapes and sizes, just like the patients and patient population it is derived from. Data sources vary widely, for
example, individual metrics such as heartbeat and pulse from an Apple watch or individual EKG or genetic sequence, from patient registries,
to electronic medical records, to claims data, to eCRF for patient chart review. Douglas Drake at Clinerion LTD looks at the complexity of finding and treating rare disease patients in a global digital haybale.